Showing posts with the label cerebral palsy

Free bikes and bike lessons for kids with special needs

AN AMAZING BIKE GIVEAWAY FOR KIDS WITH SPECIAL NEEDS For the second year in a row, the Friendship Circle is hosting a Great Bike Giveaway for kids with special needs, and they've partnered with …

The kid with special football powers who's making headlines

You've seen his handsome face before—maybe in the news or in the slideshow of awesome kids I did over the summer, or perhaps on his blog: I Have Cerebral Palsy...So What, I'm Still Awesome!…

Why you shouldn't pity my child with cerebral palsy: World Cerebral Palsy Day 2012

Today is World Cerebral Palsy Day . The organizers asked people to submit a brief video or message with an idea for bettering the world for people with CP. One of my most desperate wishes for Max is …

Ashton Kutcher's twin brother fights to spare kids from cerebral palsy

I never knew Ashton Kutcher had a twin brother, Michael, or that he had cerebral palsy. But now I do and I am wowed. Recently, Michael traveled to Washington, D.C., to push for more research funding …

On the road of special needs parenting

NOW "Eeeyah yah ah eeeyah ah ah AH!" says Max. I'm driving our minivan, and Max is babbling in the backseat. I listen, happily, occasionally peeking into the rearview mirror to watch. I…

Oprah Your Own Show: the winner who could change our kids' lives

Question: "What do you think is the biggest misconception about people with disabilities?" Answer: "That they're helpless, and that their personalities are defined by their disabil…

Max steps out of his comfort zone (and likes it)

This is Max's table setting. It's a perma-fixture on our kitchen table; he wants it there all the time. He keeps a matching purple bowl and plate on his bed. He sleeps with them at night, and…

Our hopes for our kids (and the dreams we dare not have)

So, something started bothering me about yesterday's post on Zach Anner , the guy in the lead for Oprah's Your Own Show competition who has cerebral palsy, after I read a couple of comments h…

See how funny special needs can be, America?

After hearing about that guy Zach Anner who is creaming the competition in Oprah's "Your Own Show" contest, I finally remembered to actually check out his audition video when alert re…

A Little Leaguer with cerebral palsy gets to hang with the Yankees

I just got home from BlogHer, will post about it by Monday, lots to tell! First, I had to tell you about this. A few years ago a friend introduced me to Richard Ellenson, the guy who created the Tang…

Overworried (once again)

Here's Max, resting peacefully after he got the pre-Botox anesthesia, probably dreaming about Cars and chocolate pudding. Everything went fine. Max cried at the hospital, they knocked him out, t…

SuperMax strikes again

Thanks for all the well wishes over the weekend. As you read this, Max is either preparing to get Botox, getting the injections or recovering from them. On Saturday, Max's school "Progress R…

What I wish I'd known when Max was a baby

Max at ten months doing his best Buddha imitation. Recently, I got an e-mail from Jennifer over at The Pregnancy According To Jude . She said the blog and Max were inspiring to her, which I was grate…

Welcome to our Florida vacation!

Sanibel Island and Captiva Island are exquisite in a very untouched, natural sort of way. We're at South Seas Island Resort , which has 330 acres. It is both spectacular and kid-friendly, a rare …

Good doctors for special-needs kids vs. bad ones

You know those Wordless Wednesday posts other blogs do? Well, here at To The Max it's Word-Filled Wednesday, cause I've got a lot to say. Thanks again to everyone for the reassuring messages …

Scared of seizures

Ah, how much can change in a day. Yesterday, it was 65 degrees and Max seemed fine. Today, it is a snowy winter wonderland and I am a little panicky about the possibility that Max is having seizures…

Monday Morning Confessional: Germs don't bug me

This weekend we hung out with friends and their cutetastic 11-month-old twins. At one point, I noticed Max chewing on Cheerios one of the babies had already slobbered on and I let him keep going. I h…

Max's best friend in the whole, wide world

It's Sabrina, of course. Like any bff's, they giggle together, sometimes have it out with each other and can usually be found hanging at the local bar. (Kidding! They never fight. Right.) Sa…

Max did a happy dance today. And wore jeans.

Max, in his usual pants of choice.   I walked in the door from work tonight to the usual greeting: Sabrina's "Mommmmmy!!!!!!!!!!!!!!!!" (she's three, so all of her sentences end in …
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