Showing posts with the label Blog about child with cerebral palsy

Why you shouldn't pity my child with cerebral palsy: World Cerebral Palsy Day 2012

Today is World Cerebral Palsy Day . The organizers asked people to submit a brief video or message with an idea for bettering the world for people with CP. One of my most desperate wishes for Max is …

How to ask about my child with special needs

The comments on yesterday's post were absolutely, positive awesome. I hope a whole lot of other parents out there (i.e., ones who don't have kids with special needs) read them and learn from…

The progress I never think about (that happened on its own)

Like many parents of kids with cerebral palsy, I'm very focused on Max's physical and cognitive progress. The Botox shot in his right hand has done a nice job of loosening it up, and he's…

Cerebral palsy is a sneaky demon

Sometimes, I forget all about the cerebral palsy. It's not hard to, because Max is such a happy, healthy kid. Sometimes, it blindsides me , as it has recently—and shatters my calm about being mom…

The kindness of strangers to kids with special needs

Seven years into having a child with special needs, I am still amazed by the kindness of strangers—those little courtesies and sweet gestures people extend to Max when they realize he is disabled. It…

My child is not his age, and that is OK

"Can you help? I need a purple book, my son's obsessed with purple." That's me talking to the nice lady at Barnes & Noble over the weekend. I'd gone there to return some Spo…

Have you ever blamed yourself for what happened to your child?

I recently finished a book that's taken me months to read, This Lovely Life . A writer friend of mine knows the author, Vicki Forman, and recommended it to me. It's taken me a while to read b…

Happiness fantasies for my child vs. happiness realities

I've been thinking a lot about our Disney trip, both because we had such a fantastic time but also because it's clear I keep sabotaging my emotions by building up too-high expectations abou…

It's Cerebral Palsy Awareness Day and hello, world, my child is not a tragedy

It's impossible to remember exactly what I thought of cerebral palsy before I had Max. I'm pretty sure I could only picture a person in a wheelchair, but I'm not sure. I didn't know a…

"Mommy! If you don't let me watch TV I'll call the police!"

There are days when you think caring for your kid with special needs takes so much out of you. And then there are days like today, when you're cooped up with the kids because it's a slushy, i…

I stared at an adult with disabilities, and wondered if I was seeing Max's future

I am sitting in the Whole Foods food court. I sometimes come here to work during the afternoon, when it's impossible to get stuff done at home. Sabrina is constantly by my side, wanting to go on …

"Oh, mom, leave me alone!"

Some students at a local college are raking leaves in our neighborhood in exchange for a donation to Habitat for Humanity , a favorite cause of mine. I signed up, and two guys and a girl came over an…

Max and I are going to be rich and famous!

Oh, OK, so maybe we might just win a contest. I'm a finalist for The Bump Mommy Blog Awards in the "Hottest Mom" category. Oh, OK, it's the "Special Needs Blog" category. …

Celebs who have kids with special needs

I'm just catching up on this week's events, and read an article detailing what John Travolta revealed during this week's trial against the two so-called human beings accused of trying to…

The missing California boy with cerebral palsy

Some of you may have heard about Hassani Campbell, the missing five-year-old boy with cerebral palsy from Oakland, California. The story has been haunting me. His beautiful face has been haunting me.…
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