Cerebral palsy is not my child: In honor of Cerebral Palsy Awareness Day 2011


My child with cerebral palsy is not the same as another child with cerebral palsy; the condition isn't one size fits all. There are various types. Even within the same type, it affects every kid (and adult) differently.

My child with cerebral palsy is not defined by his disability. He is a cheerful, outgoing, spaghetti-eating, purple-loving kid who happens to have CP. He is not A Kid With CP. Please do not refer to him that way (although he'd be psyched if you called him Purple Max).

My child with cerebral palsy is not someone to be pitied. That should be reserved for children who truly exist in sad circumstances.

My child with cerebral palsy is not an angel just because he has a disability. He can be naughty and bratty and everything-y any typical kid can be. Just ask his sister.

My child with cerebral palsy is not someone I go the extra mile for because I am an angel. He is my child. You do what you can do to help your children succeed in life.

My child with cerebral palsy is not hard of hearing. When you talk about him as if he is not there, hello, he can hear you.

My child with cerebral palsy is not meant to be ignored at the playground, at the gym, or anywhere else physicality rules. He may move more slowly than other kids but he is just as gung-ho to have fun. Include him.

My child with cerebral palsy is not a "cutie pie." He is not "so sweet." He is not necessarily any of those belittling words well-meaning people use to describe children with special needs. He is "smart." He is "funny." He is any personality trait any kid can have.

My child with cerebral palsy is not someone to be openly gawked at. So what if he drools; your child eats his boogers. Kids have their quirks. (You may, however feel free to gawk at his gorgeous mom.)

My child with cerebral palsy does not have something catchy, although from the way some parents hover nervously when their child is around him, you might very well think he does.

My child with cerebral palsy is not someone or something I "have to live with." He brings me joy that may not be possible to understand...unless you have a child with cerebral palsy.

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